My Fundraising Page

Hanging Up My Running Shoes
Jul 30, 2012

When I posted about chai, my doctor was still thinking that I had a tendon strain and would be out of training for just a few weeks. He didn't see any reason that i couldn't complete my event. But then he saw my MRI. I'll be getting a second opinion, but this (very running-positive) doc made it clear that I am likely to never run again. He hopes that I'll be able to return to walking my dogs by spring. Spring. I have a stress fracture that is apparently so severe that I was only a few steps away from having a full fracture that would require metal plates and pins. I took a few days to wallow, and to learn how to use crutches. And now I'm trying to make a new plan. The crutches are hard enough that I'm considering them cross-training. For what, exactly, I don't know.


In the meantime, I want to say thank you. Thank you for contributing so much money to help battle blood cancers. Thank you for helping me to kick cancer in the teeth when I was desperate to keep fighting even though Phenon was well. And especially thank you for helping me to have made a tangible contribution, even though I can't run. Even though I won't be running across a finish line, I DID contribute to the battle. And cancer will be worse off for it. So there!


I have about a week before this page gets taken down. Since I won't be participating in the event any more, I can't raise money through this page any more. But I still have a week to reach my goal, and to pay chai forward. If you know anyone that would still be willing to donate $20 or so, could you forward this to them? As one last hurrah? I'd be so very, very grateful. Thanks!

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Chai
Jul 27, 2012

Welcome to my fundraising page! I am so close to my new fundraising goal - are you able to help? I have had a number of friends donate $18, because that number is the same as the Hebrew word chai, which means life. A donation to represent a long life - for my girl, for the people who come after her and need help from LLS, for all the families struggling with blood cancers. I thought it would be really nice if I was able to raise money to a nice round multiple of chai, so I set my new goal to $3600.


I've had some hiccups in my training. In my attempt to change my running form to reduce the risk of injuries, I injured myself. Boo! So, now I'm in a cast and on crutches, and am not allowed to run or walk for a few weeks. But it's just for a few weeks, and then I'm allowed back in the game. I had been doing run-walk training (run 2-3 minutes, then walk 1 minute, over and over again for the length of the training), but just before I injured myself, I made it to running 8 miles consecutively, with no walking intervals at all. I've been feeling really proud of myself, and like cancer has no chance. I'm really bummed about not being able to train for a few weeks, but am diligently doing everything my doctor says so I can heal thoroughly and well, and be ready to start back up again in time to complete the race in October. And today I learned that walking on crutches is very, very, very difficult for me. So, I'm going to consider this a few weeks of cross-training before I return to running. This kind of cross-training can be demoralizing though, so if you're able to make a donation to lend me moral support, I'd be so very grateful!


Thanks, as always, for your support!

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Still Ticking Along
Jun 02, 2012

Hooray!! Due to your incredible generosity, I have reached both my minimum required fundraising goal as well as my own increased goal. I have been blown away by your caring and support. I have been in first place for fundraising on my half-marathon team, and that has felt terrific, what with me being in last place for the actual "running" at every team training session so far.


Even though I've reached my fundraising goal, note that I can continue to receive donations. Every dollar contributed is another blow to blood cancers and tangible support for families who are struggling. I met a woman at training today who was in an LLS fundraising competition (the Woman of the Year competition) because her family had benefited profoundly from the financial assistance her father received when he had to live in the hospital for four months (leukemia sucks). She was competing to pay forward the help her family had received. What a worthy goal!


In regard to the actual training for the actual "running," I seem to have made a break through yesterday. I figured out that if I "run" at whatever speed keeps my heart rate in an aerobic zone, I don't feel on the verge of death and/or vomiting. This feels like a miracle! When I used this strategy this morning, I was definitively last in finishing, but this time the coaches didn't seemed panicked that I might be in danger of a health crisis at any moment! I must have looked better at the end. Progress feels good! :-)


Thank you, everyone, for your help in fighting cancer. I hate it a lot and want to kill it dead!


Here's a photo of Phenon getting ready for a class presentation about the explorer Cortez. And me, not dead, after my first training run.



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Cancer is a Loser
May 09, 2012

My 13-year-old daughter, Phenon, takes no prisoners. As you can see from her picture, Phenon thinks cancer is a loser. Phenon was diagnosed with Hodgkin's Lymphoma in October 2011. On May 14, 2012, she will complete the last of the milestones in her treatment - she will have surgery to get her chemotherapy port-a-cath removed. Clearly, Phenon has completely kicked lymphoma's ass.


But let's face it - lymphoma has completely kicked MY ass. All of that stress, lack of sleep, sitting, hospital time, and all of the delicious meals (and desserts!!) our community provided us with for months. It's a fact that I am significantly worse for the wear. And, even though Phenon is done with her fight, I feel like I need to keep doing something to make sure the lymphoma doesn't come back, and it doesn't get anyone else.


So, I decided to sign up for the Leukemia & Lymphoma Society (LLS) Team In Training (that's abbreviated TNT, not TIT, for obvious reasons! :-) ). I get a coach and a mentor to help me train to run a half marathon in Baltimore in October 2012. And to help me reverse the effects that lymphoma has had on me. And to raise money to make sure that lymphoma continues to get smacked down hard. The LLS financial information is on their donations page here , but a summary is that 78% of donations go to services. They help fund the Children's Oncology Group (the research team that Phenon's doctor, Shana Jacobs, participates in), support groups, funding for patients in dire financial straits, public education, continuing education for professionals, and research efforts (24% of their budget). They are a worthwhile organization that is changing the way people experience blood cancers.


For those that have been following our story through Phenon's illness, you know that Phenon's particular case did not fit into any of the research data that has existed to date. Research grants from the LLS will allow studies of the best course of treatment for kids like Phenon who don't fit into any of the easy categories. And that seems really important to me! I'd also like to play a role in supporting families in the future that have to make the tough calls before the research can help guide them. And the families that have to face this crap without the amazing, supportive, and loving community that we have.


Will you help me smack down cancer again? Your donation will help me carry on the fight in a new way! Thank you!


Julie


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My Fundraising Total

Raised: ($3,775.00) | Goal: $3,600.00
 
-105 %

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