My Fundraising Page

Sally's Fundraising Page
Aug 26, 2011

Welcome to my Team in Training fundraising page!


First I want to share my story with you...


When I was three and a half years old I was diagnosed with Acute Lymphocytic Leukemia (ALL). Over the course of the next twenty seven months I endured various chemotherapy treatments, including spinal taps every sixteen weeks. I still get shivers down my spine when I say this, or even type it now. Over the years I have repeated this over and over again, to the newspaper reporters covering my story growing up, and to my family and friends along the way. But it wasn’t until just the other day, when I was confirming the details of my diagnosis with my parents, before writing this letter, that these words actually sank in. Starting from the time I was three and a half, I lived with years of needles, hospital visits, fevers, spinal taps, and daily chemo medicine. It was ten years before my parents even felt secure using the word "cured."


Why had this never really sunk in before? Well, because growing up “being sick” was never that big of a deal--- it was just the way my life was.



When my hair started to fall out and my cheeks puffed up from the new chemo regimen, I just put on an extra big smile and went to school.




There was one year I was too sick to go trick or treating, so my parents dressed up as different characters behind each door in my house, as I walked around knocking with my candy basket.






Another year I had a dance recital coming up, and the chemo had seeped out of my veins and on to my skin, giving me what’s called a “chemo burn” on my wrist. So naturally I just put on my tutu and danced anyway!


But the reality is that I almost died, and it has taken me a really long time to accept this about my life.


Growing up with Leukemia exposed me to a childhood different than what my parents expected or wanted for me. But once the diagnosis was made, it was not going to stop me from being as “normal” as possible.


This August marked my 24th year of being cancer free! (Pause—whoa—deep breathe—smile)





And I am going to celebrate by giving back to the organization that SAVED MY LIFE—The Leukemia & Lymphoma Society and Team in Training!!!!


On October 2nd I am going to run the unimaginable, long, terrifying, I don’t even like driving this far, distance of 26.2 miles of the Maine Marathon.


Why you might ask, am I going to put myself through training and running a marathon?


Because I am one of the very lucky ones; I am one of the children who survived. I am alive because of the research funded by The Leukemia & Lymphoma Society and the patient support services they provide. The real question is how could I not give back to the organization that helped save my life? How could I not run to raise money for the children who are walking into the hospital right now and holding their stuffed animals tight, as they try to be brave just one more time?


And why am I running with Team in Training?


Because when I had cancer I was a Team in Training “honored hero” patient. I was matched with local runners who were also raising money for the lifesaving treatments that the LLS funds. These runners crossed the finish line and brought me back their medals! Growing up I always said One day I would like to run a marathon as a celebration of my life and the Team in Training program.


Well, “one day” is this day, and I am writing you this letter because I would like you to join me in crossing the finish line and raising money to find a cure for Leukemia.


The facts you need to know about blood cancer:


  • There is no known cure
  • Leukemia remains the leading cause of cancer related death in children
  • Every four minutes, someone is newly diagnosed with a blood cancer
  • Every ten minutes, another child or adult is expected to die from a blood-related cancer
  • The research is working! In 1960, the five year survival rate for children with the most common form of leukemia was 4%. Today it is 85%...oh my gosh!!! Let’s help it reach 100%!!!

Donations:


  • 75% goes to research and patient support services---two of the instrumental parts in my own recovery
  • Are 100% tax deductible
  • Will help save lives


To be a part of Team in Training and run in the Maine Marathon I must reach the fundraising minimum of $2,000. BUT….seeing as I am running my butt off training for an organization that helped SAVE MY LIFE; I want to give back even more! My personal fundraising goal is $13,000. Please join me in crossing the finish line by making a donation and sending this letter to anyone you think will be willing to help me reach this goal!


My fundraising deadline is September 19th, but I will gladly accept donations after this date. Donations can be made here on this page, OR you can send me a check (57 North Street, Hatfield, Ma 01038) payable to The Leukemia & Lymphoma Society.


From the bottom of my tired legs and fast-beating heart, I couldn’t be more thankful for sharing this life changing experience with all of you. Thank you.


I hope you will visit my web site often. Be sure to check back frequently to see my training progress.Thank you for your support!

5
 
 

Supporter's Comments

  •  
    "I love the tutu picture and the Halloween story made me weep. I'm so impressed with your attitude and your courage. You can do this! You already beat cancer - what's a few more miles? "
     

    Jacqueline

    Tue Jul 12 11:50:55 EDT 2011

  •  
    "Awesome & Inspiring! Run Sally Run!"
     

    Cherie Mercer Twohy

    Tue Jul 12 12:24:48 EDT 2011

  •  
    "Honored to be on this team, always. Sally Ekus shows the way, always has, always will. "
     

    Nancie McDermott

    Tue Jul 12 04:43:10 EDT 2011

  •  
    "Sally, I'm thrilled that you're taking on this challenge and happy to support you. I lost a sister to brain cancer and a dear friend was recently diagnosed with breast cancer, so your story hits home. Kick butt in training!"
     

    Joe Yonan

    Tue Jul 12 07:45:15 EDT 2011

  •  
    "Sally, You are our hero and inspiration. We love you and will be running with you in spirit. Ilene, Rick and Mark"
     

    Ilene Cohen

    Tue Jul 12 10:48:31 EDT 2011

  •  
    "Hi Sally, We're friends of Amelia's, and therefore fans of the Ekus family :) Such an inspiring story and a great cause! Best of luck with your fundraising efforts! Best, Elizabeth & Josh"
     

    Elizabeth & Josh

    Wed Jul 13 12:01:25 EDT 2011

  •  
    "Good Luck Sally!"
     

    Kevin Gillespie

    Thu Jul 14 10:54:08 EDT 2011

  •  
    "You always continue to amaze me Sally. Your smile lights up our lives. I have no doubt you will reach (& exceed) your goals, in this endeavor and beyond!"
     

    Aunt Iris

    Thu Jul 14 01:44:20 EDT 2011

  •  
    "So glad to be part of Team Sally and help celebrate your life. Hugs, Beth"
     

    Beth Hillson

    Thu Jul 14 02:43:29 EDT 2011

  •  
    "Thank you for doing this, Sally. I was diagnosed with Hodgkin's Lymphoma in June 2004. After 7 months of treatment, I've been cancer free ever since. LLS was a big help to me back then, and so glad you're helping raise money for such a great cause."
     

    Russ Walker

    Thu Jul 14 07:59:30 EDT 2011

  •  
    "I'm Iris's business partner here in Virginia; best wishes on running a great race!"
     

    W. Scott Mowry

    Fri Jul 15 11:30:00 EDT 2011

  •  
    "We are soooo proud of you, and so happy to claim you as a grand daughter. "
     

    Gram and Poppy

    Fri Jul 15 02:52:01 EDT 2011

  •  
    "Good luck reaching your goal!"
     

    Gino Sorcinelli

    Sat Jul 16 07:36:43 EDT 2011

  •  
    "You go girl!!!"
     

    Justin Albert

    Sun Jul 17 11:22:07 EDT 2011

  •  
    "Run Sally Run!!!"
     

    Carol Durst-Wertheim

    Mon Jul 18 08:24:14 EDT 2011

  •  
    "You're amazing Sal! What a great lifetime achievement! xoxox"
     

    Liv Homstead

    Tue Jul 19 05:24:25 EDT 2011

  •  
    "Thanks so much for sharing your story Sally...amazing woman! Nico's port comes out tomorrow morning...this small donation may help other Sallys and Nicos...take care of those feet and legs!"
     

    Jane Lyons

    Tue Jul 19 07:23:58 EDT 2011

  •  
    "I work with Jane Novatt, she forwarded your message to me. Your page is impressive. Good Luck with your efforts - - -keep up the good work."
     

    Nadine Kellogg

    Wed Jul 20 12:22:12 EDT 2011

  •  
    "Sally, I know and understand the commitment you've made to fund raising and training. I ran my first marathon with TNT in October 2001. It was in Dublin, Irleand. Best of luck with the race! I would love to hear how it goes for you! - Tara Wilson"
     

    Tara Wilson

    Thu Jul 28 06:48:36 EDT 2011

  •  
    "Really proud of you Sal!!!!! :)"
     

    Alyssa Kozyra

    Sun Jul 31 03:32:17 EDT 2011

  •  
    "Thanks for being so inspiring!"
     

    The Golub Family

    Sun Jul 31 04:35:37 EDT 2011

  •  
    "You are an inspiration. We Love you!"
     

    Cheryl and Jim

    Wed Aug 03 08:36:31 EDT 2011

  •  
    "Good luck from Jo, George and everyone at Al Forno!"
     

    Johanne Killen and George Germon

    Sat Aug 20 10:12:44 EDT 2011

  •  
    "Sally, Your Story on your website was very touching... I can't help, but think Shaney is watching over you and in doing so, answering a prayer. I sure hope someday we will meet. May you run with angels under your feet...I know of one that will be there! Cerena"
     

    Shawna Laderach/Cerena Banks

    Sun Aug 21 03:39:53 EDT 2011

  •  
    "Sally, you are an inspiration. good luck julie"
     

    julie rader schonbrun

    Tue Aug 23 01:58:20 EDT 2011

  •  
    "Fantastic Sally. Will think of you. What an achievement. Kessie"
     

    Kessie

    Fri Aug 26 08:28:42 EDT 2011

  •  
    "You go girl!"
     

    Laurie Burrows Grad

    Sun Aug 28 12:22:20 EDT 2011

  •  
    "This run is a miracle celebration. My pride and love of Sally knows no bounds, just as her courage and hope was always boundless. Thank you to all who have shared our journey and support Sally's triumph! Lisa"
     

    Lisa Ekus

    Mon Aug 29 12:35:54 EDT 2011

  •  
    "Your mom just glows when she talks about you!"
     

    Ruth Zommick

    Tue Aug 30 04:19:19 EDT 2011

  •  
    "You are inspirational!! We wish you all the best."
     

    Diamond Fasteners

    Thu Sep 01 11:55:51 EDT 2011

  •  
    "You go, girl. Team in Training is a wonderful program and this is such a great thing you're doing. Good luck in training and on the big day!"
     

    Michelle Dudash

    Fri Sep 02 01:47:37 EDT 2011

  •  
    "Hi Sally: This is from me and my boyfriend Tony. I see you have surpassed your goals. You go girl. Please keep in touch. All my love, Aunt Harriet"
     

    Aunt Harriet

    Sun Sep 04 10:44:54 EDT 2011

  •  
    "Best of luck. What a journey."
     

    Sheila Schroeder

    Wed Sep 07 05:50:14 EDT 2011

  •  
    "Go salsifrazzzz!"
     

    Rose Weiss

    Thu Sep 15 04:47:52 EDT 2011

  •  
    "You're an Inspiration Sally! Good luck in the race!!"
     

    Debbie & Ian Sanford

    Fri Sep 16 10:44:06 EDT 2011

  •  
    "You are truly amazing, Sally. Do you have any idea how much you inspire and touch others by being YOU? It's OK if you don't...I'll just keep telling you :-)."
     

    Lia Huber

    Mon Sep 26 10:27:44 EDT 2011

  •  
    "We wanted to support your cause. Good luck and have fun. We love you, the boys from Montana"
     

    Rick and Mark

    Thu Sep 29 07:13:40 EDT 2011

  •  
    "Congratulations on exceeding your goal and all your determination to get here! We are very proud to support you. Kerry and Neil"
     

    Kerry Homstead

    Sat Oct 01 12:02:20 EDT 2011

  •  
    "Sally, I think it's really awesome that you did this-- thanks for sharing your story, and congratulations!"
     

    Elizabeth Kulik

    Sun Oct 02 12:41:54 EDT 2011

My Fundraising Total

Raised: $21,376.42 | Goal: $13,000.00
 
164 %

Make a Donation


We are sorry donations are no longer being accepted for this participant for this event.

My Thanks To

Lisa Ekus $1100.00
Florence & Peter $1000.00
Gram and Poppy $1000.00
Kevin Gillespie $1000.00
david saffer $1000.00
virginia willis $500.00
The Benjamin Family $500.00
3 Little Birds $500.00
Diamond Fasteners $500.00
Johanne Killen and George... $500.00
Aunt Iris $500.00
Robert J. Dees $350.00
Northampton Area Pediatri... $250.00
Katherine Putnam $250.00
Lucille Moore $250.00
Ruth Zommick $250.00
Lizanne Ceconi $250.00
Elizabeth Andoh $250.00
Aunt A. dahncke $250.00
Stephanie Holmes $250.00
Craig Goldwyn $250.00
Leila K DeRose $200.00
Amelia Ekus $175.00
Ruth Spelick $150.00
lollipop Cohen $150.00
Judith Finlayson $150.00
Sandra Gutierrez $150.00
Barbara White $100.00
Kelley A Coffeen, DBA $100.00
Susan Eilertsen $100.00
Arlene Bronstein $100.00
Laurey Masterton $100.00
Kerry Homstead $100.00
adrienne dahncke $100.00
Randy & Sue Frost $100.00
judy Witts $100.00
Shalu Arora $100.00
David, Robert and Robin J... $100.00
reihana robinson $100.00
A.J. Rathbun $100.00
Judith Fertig $100.00
Regina Tomlin $100.00
Robert Schaeffer MD $100.00
Merry Nasser $100.00
Susan Purdy $100.00
Olivia Frost $100.00
Kathleen Grandonico $100.00
Aunt Harriet $100.00
Elise Dahncke $100.00
Gerald Rosmarin $100.00
David Milstein $100.00
Karen Adler $100.00
Paul Kronish $100.00
Lauren Tagerman $100.00
"Cerena Banks $100.00
Jim Eber & Amy Richter $100.00
Pascha Scott $100.00
dale & howard chapman $100.00
Food Fanatics Inc $100.00
Jenni Ferrari-Adler $100.00
Nava Atlas $100.00
Farm Friendly LLC $100.00
Haley Hardin $100.00
Catherine Jones $100.00
Carol Durst-Wertheim $100.00
Jason Struhl $100.00
Russ Walker $100.00
eileen cleary $100.00
Ilene Cohen $100.00
Nancy Ryan $100.00
Joe Yonan $100.00
Cherie Mercer Twohy $100.00
Meyers Bros. Kalicka PC $85.00
Alex Porush $80.00
Ethel Hofman $75.00
Electrified Cooks, LLC $70.00
Corinne Demas $50.00
Cynthia Littlefield $50.00
J Delf $50.00
Alvin Zelickson $50.00
Carlos Nieto $50.00
Martha Byne $50.00
Rick and Mark $50.00
Miyoko Schinner $50.00
David Huggard Bollinger $50.00
Pan World Travel Services $50.00
Kenneth Abrahams $50.00
Thomas & Michele Atkinson... $50.00
Don Lesser $50.00
Terry Ford $50.00
Paula Miller $50.00
Thaddeus S. Logan III $50.00
Mary Heiss $50.00
William Tagerman $50.00
Michelle Dudash $50.00
Trina Kaye $50.00
Gertrude Epstein $50.00
Louis Heckler $50.00
Ann Cleaveland LICSW $50.00
Ryan McMillen $50.00
Scott Porush $50.00
Laurie Burrows Grad $50.00
Darra Goldstein $50.00
julie rader schonbrun $50.00
stanton moss $50.00
Melanie Barnard $50.00
suzanne sadler $50.00
Lisa Tumminello $50.00
Cheryl and Jim $50.00
The Golub Family $50.00
Tara Wilson $50.00
Katie Chin $50.00
Betty Rosottom $50.00
Ken Bookman $50.00
Maria Kijac $50.00
Russ Ekstrom $50.00
Liv Homstead $50.00
Lisa Kartzman $50.00
jane novatt $50.00
Carol Fenster $50.00
Justin Albert $50.00
Gino Sorcinelli $50.00
Rachel Ekus $50.00
Fran Costigan $50.00
Beth Hillson $50.00
Lori Galvin $50.00
David Joachim $50.00
Christa Gala $50.00
Nancie McDermott $50.00
Gwen Ashley Walters $50.00
Steven Kolpan $50.00
Jennifer Sibley $50.00
Nahum Waxman $40.00
The Neil & Judith Auerbac... $36.00
Renee Sedliar $35.00
Bobbie Nester $30.00
David Abrami $26.22
Ashley Ondrick $26.20
Lenada Merrick $25.00
Joseph Houghton $25.00
Deb Roussou $25.00
Colin Fay $25.00
Janet & Herbert Hodos $25.00
Barbara Novatt $25.00
Barbra Tallarico $25.00
charlene nolan $25.00
Carey Dahncke $25.00
Mary Thaman $25.00
Richard Stromgren $25.00
Jennifer Josephy $25.00
Brian Molloy $25.00
Sheila Schroeder $25.00
Chris Steighner $25.00
For the Bodensteiner's $25.00
Jim Polep $25.00
Carol Lovitch $25.00
Ed & Perrin Rountree $25.00
Michael and Cheryl Goodma... $25.00
Cathy Crosky $25.00
Janet Egelhofer $25.00
Cynthia Gold $25.00
Shawna Laderach/Cerena Ba... $25.00
June C Jacobs $25.00
Irena Chalmers $25.00
Jenny Wapner $25.00
Mary Anne Lloyd $25.00
Zachary Constantine $25.00
Nicholas Constantine $25.00
Alyssa Kozyra $25.00
Lisa Nelson $25.00
Linda Gassenheimer $25.00
Sean Kimball $25.00
Nadine Kellogg $25.00
Paulette Phlipot $25.00
Kimberly Francis $25.00
Matthew Frank $25.00
W. Scott Mowry $25.00
Popsicle Sunshine $25.00
Lisa Richardson $25.00
Karl Ulrich $25.00
Elizabeth & Josh $25.00
Jenna Fiorini $25.00
Natalie Slater $25.00
Allyson Kramer $25.00
Asha Gomez $25.00
Jacqueline $25.00
Gena Berry $25.00
Mike Tuccillo $25.00
Jessica Cook $25.00
Matthew Whitaker $20.00
Ashley Blom $20.00
Sharon Pinkerton $20.00
William Wear $20.00
Debbie & Ian Sanford $18.00
Elizabeth Kulik $15.00
Kate Heyhoe $10.00
Bernard Siegel $10.00
Marcia Albert $10.00
Linda Schwartz $10.00
Bernard Siegel $10.00
Lia Huber  
Lisa Kaplan  
Vadah & Curt Dahncke  
Thanks D. and J.  
Rose Weiss  
Kessie  
Jill Bernstein  
Dara Bunjon  
Jane Lyons  
Michele Marotta  
Marisa Zogg