My Fundraising Page

Oct 15, 2014

Cancer Stops With Me is a great motto and every dollar that you donate will go to help fund much needed cancer research and patient support. 

 

It takes $50,000.00 to fund one cancer research grant, I can't do it without your help!

Sep 11, 2014

The GOAL is to raise $45,000 in 37 days. 

The idea is to END cancer!

 

Lives like my hero, Asher, have been saved because of research funded by LLS.

PLEASE donate today.

Jun 16, 2014

Join Asher's Angels and help us raise enough money to fund a Leukemia Research Grant! 

 

This is a huge task and we need your help.  I have been raising money (with your help) for The Leukemia Lymphoma Society since 2010 but this year will be the biggest and the best, you see on November 30, 2014 Asher will be a 5 year survivor.  What better way to honor this fight and survival story than to name a Leukemia Research Grant in his honor.  The magic number is $50,000.00 and with your generous support and donations we will be able to reach this goal.

 

Asher is a fighter but his fight wouldn't be possible if it wasn't for previous research grants that allowed for the development of groundbreaking medications that are key to his treatment  for Philadelphia positive chronic myeloid leukemia (Ph+CML).  Asher's leukemia does not respond to standard chemotherpay and is only treated with an inhibiting medication (type of chemo) that has only been in use since 1999.  Before Gleevec the average lifespan for a Ph+CML patient was 3-5 years, and it wasn't the full vibrant life that Asher's enioys today.

 

Although there have been great stride with medical research we still don't have a cure, 

1 new person in the US is diagnosed with blood cancer every 4 minutes and not all patients respond to the current medications. 

 

Asher failed on Gleevec and was able to achieve and maintain cytogenic remission on his current medication, Sprycel for 2 years.  Unfortunately we are reminded that this is a constant fight, Asher's leukemia counts have gone up on his last two blood tests this year.

We are hoping and praying this was an anomoly.

If for some reason we need to change therapy I do find comfort in knowing that research continues and there are other options for Asher to try.

Jun 16, 2014

WELCOME TO MY TEAM IN TRAINING (TNT) HOME PAGE!

 

It takes more than one person to make up a team and that’s why I’m asking for your help. Through TNT I am able to participate in an endurance event, I chose the Nike Women's Half Marathon again this year, and YOU are able to help me raise money for the Leukemia Lymphoma Society by generously donating through my fundraising page!

 

By raising money for The Leukemia & Lymphoma Society’s (LLS), I am raising funds to help find cures and ensure access to treatments for blood cancer patients.

 

Your donation will help fund these treatments that save lives every day; like my son's life.  You may not know it, but every single donation helps save a life with breakthrough therapies such as these.  My son, Asher,  is a five year leukemia survivor and LLS directly contributed to his success.  Asher is undergoing treatment that was funded directly through an LLS research grant.  I have a direct connection and I know so many other individuals and families that benefit fromt he work that LLS does.

 

I can't do this alone... I need is a little help from YOU, patients need these cures and they need your support.

 

Please make a donation today and join me in the fight to end cancer.

 

heartThank you! heart

Stay tuned, Next post you will get to meet Asher and hear more about his fight.  This year I will update my page regularly and share my training journey with you.

 

 

 

Jun 16, 2014

Asher...my youngest son...my Sunshine...my inspiration. 

 

On November 30, 2009 Asher was diagnosed with Philadelphia Positive Chronic Myeloid Leukemia (PH+CML), a form of leukemia normally found in adults over 60 and rarely in children. I was stunned with the diagnosis and terrified about what his prognosis would be. The first week was difficult but we made it through with the amazing support of family, friends, doctors, nurses, social workers, etc... Once the shock wore off you find yourself in fight mode and we became confident that Asher could overcome CML.  We listened to everything doctors told us, learned as much as we could about CML and began living challenge by challenge, and eventually day by day.  

Asher's treatment began with Gleevec a groundbreaking cancer therapy developed in 1999, although it was helping he never really achieved the markers they hoped and he began to lose reposne almost a year to the date of his original diagnosis.  This was another blow and extremely terrifying because there was a chance Asher might need a bone marrow transplant.  Thankfully The Leukemia Lymphoma Society wasn't done raising money and funding research after Gleevec was created and there was now a 2nd and 3rd generation medication on the market that Asher could try.  Asher was accepted into a clinical trial at Children's Hospital Orange County (CHOC) and began taking his current medication Disatinib (Sprycel) in January 2010.  Sprycel has different side effects than Gleevec but the overall results were better, more promising.  Asher began to gain weight and grow, he also wasn't as naucious and had more energy.  By the end of 2010 Asher had achieved Cytogenic remission and his leukemia cells were no longer detectible in the genetic testing they do to determine his levels, this is his BCR/ABL count.  Asher continued to respond and by January 2012 the clinical trial was technically completed,  but CHOC continues to follow his progress and work with us on the many ups and downs that come with this fight. 

 

Today Asher remains in cytogenic remission but we are reminded that this truly is a fight and there is more research that needs to be done.  Asher's last two counts have come up and his BCR/ABL is no longer undetected.  Our doctors are monitoring him closely, consulting with other specialists and determining what our next steps will be.  Asher has a follow up blood test In late June, we are hoping the increase was a fluke due to allergies taxing his immune system, etc... I will post his results as soon as we have them but we will continue to fight!

 

Thoughts and prayers xox

 

 

 

Make a Donation

We are no longer accepting donations for this event, however you can still make a donation to The Leukemia & Lymphoma Society.

Supporter Comments

"I know you'll reach that goal! "
Anonymous user
Thu Jun 5 07:11:32 EDT 2014
"We Love You Asher! Go Cyndi!"
Gloria Fonseca
Fri Jun 6 10:53:20 EDT 2014
"The Girl Scouts love you bunny!"
Gena Downey
Fri Jun 6 11:46:47 EDT 2014
"Rock On Asher!! and you too Cyndi...but Asher is cooler than you are!!"
Tracy Seneca
Fri Jun 6 06:01:10 EDT 2014
"Cyndi, you are such an inspiration! I really want you to get this grant! Go Team! xo"
Katie Krieg
Mon Jun 9 03:11:42 EDT 2014
"With love from Saaren, Matt and Nibbles (Olive) <333"
Saaren Ghazi
Thu Jun 12 02:49:57 EDT 2014
"Go Cyndi! "
Chris Drews
Fri Jun 13 12:28:10 EDT 2014
"Cyndi, Asher is always in our thoughts and prayers. He has been such an inspiration to Noah and you have been such an inspiration to Keith and I. Giving you strength and positive energy for good results on his next blood test. Love you guys XO, Keith, Cil & Noah"
Keith and Cecile Michaelis
Fri Jun 13 03:25:25 EDT 2014
"The Vance's wish you the best!"
Joanie and Joe Vance
Fri Jun 13 09:26:37 EDT 2014
"McGhee Family"
McGhee Family
Mon Jun 16 06:14:03 EDT 2014
"...keep fighting...."
Lesa Prine
Tue Jun 17 01:11:34 EDT 2014
"Keeping you in our prayers, Asher! Cyndi - you and your boys are such an inspiration and we are in awe in of you and everything that you do! Balgemino Family"
Balgemino Family
Wed Jun 18 02:39:07 EDT 2014
"With Love"
Alicia Mirelez
Wed Jun 18 05:01:38 EDT 2014
"Go team. Our family has been with TNT since 2002. My daughter just completed a century bike ride with TNT, my son is doing a 150 mike bike ride in WI next month, my other daughter has done a marathon or two with TNT. I am a 16 year CLL survivor."
Peter Valk
Thu Jun 19 05:18:02 EDT 2014
"Cyndi, you are an amazing mom, friend, and advocate for LLS! Good luck reaching your impressive $50,000 goal! I am happy to play a small part in it :-) XOXO!"
Lauren Plichta
Mon Jun 23 06:44:51 EDT 2014
"Good Luck, you're amazing."
sandy abe
Fri Jun 27 07:38:43 EDT 2014
"Way to go, Cyndi and Asher! Both of you continue to inspire and amaze. xoxoxo"
Bernadette Nimsoun
Thu Jul 3 07:16:44 EDT 2014
"Go Asher!!!!!!!!"
Sean and Randi
Thu Jul 10 04:52:27 EDT 2014
"Win, Be the champ!"
Erynn Celine
Fri Jul 11 05:39:23 EDT 2014
"Wishing you all the best Cyndi & Asher!"
Crissy Thomas-Taylor
Sat Jul 19 03:05:34 EDT 2014
"Proud to support my little buddy and your fundraising efforts."
Steven Cantrell
Thu Sep 11 04:40:53 EDT 2014
"Go Cyndi Go!! You are one hellava mama & I am proud to call you my friend!! Thanks for all you do for blood cancers!! You rock!! "
Kim Byrne
Thu Sep 11 04:57:12 EDT 2014
"Be strong Asher!"
Anonymous user
Thu Sep 11 10:14:42 EDT 2014
"Your story has been a constant source of inspiration to me since my very first season in TNT. I look forward to the day a cure is here. Go team!"
jenny stanley
Wed Oct 15 05:47:40 EDT 2014
"Your strength is encouraging, and your love for life is infectious. Keep up the fight!!!"
Kathy Thompson
Thu Oct 30 02:08:20 EDT 2014

My Fundraising Total

70%
70 %

Make a Donation

We are no longer accepting donations for this event, however you can still make a donation to The Leukemia & Lymphoma Society.

My Thanks To

Joanie and Joe Vance... $200.00
Cyndi Thompson $150.00
Chris Drews $100.00
Tracy Seneca $100.00
Spike Hike $100.00
Melanie Beard $100.00
Anonymous $100.00
Kathy Thompson $100.00
Sean and Randi $100.00
Anaya Nassor $100.00
Sonya Terrazas $100.00
Luigi & Nina $100.00
lesley allery $100.00
Chris & Mel Frer... $100.00
Lauren Plichta $100.00
Charles Steinberg $100.00
Alicia Mirelez $100.00
Balgemino Family $100.00
Bryan Monroe $100.00
Lesa Prine $100.00
Keith and Cecile Mic... $100.00
Craig Relyea $100.00
Jim Molinets $100.00
Heather Anderson $100.00
Jonathan Mitchell $100.00
Anonymous $100.00
Chris Gliddon $50.00
Kathy Nolda $50.00
Tamara Johnston $50.00
Diane S. $50.00
Arlene Kedikian $50.00
jenny stanley $50.00
Steven Cantrell $50.00
Jessica Klein $50.00
Crissy Thomas-Taylo... $50.00
Bernadette Nimsoun $50.00
Kristene Turner $50.00
Anonymous $50.00
Amber Anderson $50.00
Peter Valk $50.00
Belinda Cheng Lui $50.00
McGhee Family $50.00
The Roosevelt Family... $50.00
Gena Downey $50.00
Linda Lammers $40.00
Gitanjali Mohindra $25.00
Trisha Munoz $25.00
sandy abe $25.00
Stephanie Martinelli... $25.00
Saaren Ghazi $25.00
Gloria Fonseca $25.00
Tracey Asa $25.00
Mira Gonzalez $10.00
Kim Byrne
Katie Krieg
Erynn Celine
dominic griffin
Lynn D'Albertanson

Supporter Comments

"I know you'll reach that goal! "
Anonymous user
Thu Jun 5 07:11:32 EDT 2014
"We Love You Asher! Go Cyndi!"
Gloria Fonseca
Fri Jun 6 10:53:20 EDT 2014
"The Girl Scouts love you bunny!"
Gena Downey
Fri Jun 6 11:46:47 EDT 2014
"Rock On Asher!! and you too Cyndi...but Asher is cooler than you are!!"
Tracy Seneca
Fri Jun 6 06:01:10 EDT 2014
"Cyndi, you are such an inspiration! I really want you to get this grant! Go Team! xo"
Katie Krieg
Mon Jun 9 03:11:42 EDT 2014
"With love from Saaren, Matt and Nibbles (Olive) <333"
Saaren Ghazi
Thu Jun 12 02:49:57 EDT 2014
"Go Cyndi! "
Chris Drews
Fri Jun 13 12:28:10 EDT 2014
"Cyndi, Asher is always in our thoughts and prayers. He has been such an inspiration to Noah and you have been such an inspiration to Keith and I. Giving you strength and positive energy for good results on his next blood test. Love you guys XO, Keith, Cil & Noah"
Keith and Cecile Michaelis
Fri Jun 13 03:25:25 EDT 2014
"The Vance's wish you the best!"
Joanie and Joe Vance
Fri Jun 13 09:26:37 EDT 2014
"McGhee Family"
McGhee Family
Mon Jun 16 06:14:03 EDT 2014
"...keep fighting...."
Lesa Prine
Tue Jun 17 01:11:34 EDT 2014
"Keeping you in our prayers, Asher! Cyndi - you and your boys are such an inspiration and we are in awe in of you and everything that you do! Balgemino Family"
Balgemino Family
Wed Jun 18 02:39:07 EDT 2014
"With Love"
Alicia Mirelez
Wed Jun 18 05:01:38 EDT 2014
"Go team. Our family has been with TNT since 2002. My daughter just completed a century bike ride with TNT, my son is doing a 150 mike bike ride in WI next month, my other daughter has done a marathon or two with TNT. I am a 16 year CLL survivor."
Peter Valk
Thu Jun 19 05:18:02 EDT 2014
"Cyndi, you are an amazing mom, friend, and advocate for LLS! Good luck reaching your impressive $50,000 goal! I am happy to play a small part in it :-) XOXO!"
Lauren Plichta
Mon Jun 23 06:44:51 EDT 2014
"Good Luck, you're amazing."
sandy abe
Fri Jun 27 07:38:43 EDT 2014
"Way to go, Cyndi and Asher! Both of you continue to inspire and amaze. xoxoxo"
Bernadette Nimsoun
Thu Jul 3 07:16:44 EDT 2014
"Go Asher!!!!!!!!"
Sean and Randi
Thu Jul 10 04:52:27 EDT 2014
"Win, Be the champ!"
Erynn Celine
Fri Jul 11 05:39:23 EDT 2014
"Wishing you all the best Cyndi & Asher!"
Crissy Thomas-Taylor
Sat Jul 19 03:05:34 EDT 2014
"Proud to support my little buddy and your fundraising efforts."
Steven Cantrell
Thu Sep 11 04:40:53 EDT 2014
"Go Cyndi Go!! You are one hellava mama & I am proud to call you my friend!! Thanks for all you do for blood cancers!! You rock!! "
Kim Byrne
Thu Sep 11 04:57:12 EDT 2014
"Be strong Asher!"
Anonymous user
Thu Sep 11 10:14:42 EDT 2014
"Your story has been a constant source of inspiration to me since my very first season in TNT. I look forward to the day a cure is here. Go team!"
jenny stanley
Wed Oct 15 05:47:40 EDT 2014
"Your strength is encouraging, and your love for life is infectious. Keep up the fight!!!"
Kathy Thompson
Thu Oct 30 02:08:20 EDT 2014